The fight for answers

As i said my son was the complete opposite of my second daughter. He didnt sleep, didnt eat. He threw up. He was very sickly. When he was 2 weeks old i had gone to the doctor for the 7th time and told them that something was wrong. They said oh hes fine just needs a new formula because he is having problems. Give him the weekend, this was a Friday, and he will adjust to the new formula and be fine. By Friday night he was pale. I couldnt wake him. He looked terrible. My husband was away for work so i went to my parents, which was 2 hours away with my now 2 year old daughter and asked what they thought. I wanted to believe the doctor but my gut said, no screamed "hospital NOW!" 

So i left my daughter with my parents and took him to the hospital. When we got there they immediately took him and said he was in bad shape. They tried and tried to get an iv in and failed. Finally a nurse was able to, he never cried. He was that lifeless. I hoped i hadnt waited too long. I knew i couldnt lose another child, i just couldnt. Especially one that i had seen smile and fed and held. My husband and i always say the way we lost Alexis was hard but losing her after she was born and we had taken her home wouldve been a million times harder. So they took blood did tests and found nothing. Its a stomach virus they said. So they hydrated him and gave him antibiotics and after a week sent us home. 2 weeks later it would be the same thing and again we got the same answer, "must be a virus." At this point i said no, no one else had been sick, something else was wrong. So i started searching and asking questions and making them do more tests. I felt so bad. His poor little feet had been cut and squeezed for blood so many times they were purple constantly. Finally they found a formula that seemed to help so they said he had a soy and milk allergy. Then he was fine until we started baby food. Baby food was sooo much worse. One time when he was about 7 months old i gave him baby cereal, you know the oatmeal stuff. 2 hours later he was projectile vomiting and he wouldnt stop. Then started the pooping. We were so scared we took him right to the ER. Again they said virus. I said no. Its not stop saying that and fix my child. Fluids and tests and a week later we were home again. Still i kept searching for an answer. I posted on facebook and begged friends and family to share what was happening and help me. When he was 8 months old i had finally hit my breaking point. I asked my boss to put me on night shift so i wouldnt have to call off for my sons vomiting and i stayed with him constantly. I watched him like a hawk. But then he actually did get sick. He got pneumonia and it was bad. After being at the pediatrician i was told to rush him to the ER. His organs were shutting down and he was dying. Honestly until i started writing this i had almost forgotten about how bad it was. He was failure to thrive, he was dying, because he was starving. Because everything that went in came back out within 2 hours. I told the doctors "I AM NOT LEAVING, WE ARE NOT." I wanted answers and if one more doctor told me it was a virus that was causing everything i was going to scream. So 2 weeks in a hospital that had become like a second home i got a message from a stranger on Facebook. It was a reporter that had just written an article about a little girl in a nearby town, a little girl that had an illness that had a lot of the same symptoms my son had. It was very rare and didnt even have a medical code yet, but a friend on facebook had shared my post and she had seen it. She gave me the girls mothers name and told me to call her. I did, what i heard from her was that she had been through the same thing and her research and an allergist had brought her to the conclusion and ultimate diagnosis of her daughters illness, an illness that was about to be my entire world. I told the doctors i wanted whatever test i needed to see if he had the same thing and after a lot of yelling and denial on the doctors part we were sent to an allergist.